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Presentations

The CPSP is committed to sharing information that showcases the value of active surveillance and keeps participants engaged in the program. Presentations of interim data and final study results at national and international scientific meetings are encouraged.

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2000
Reports of hemorrhagic disease of the newborn (HDNB) to the Canadian Paediatric Surveillance Program (CPSP): Frequency, errors and relationship to vitamin K

McMillan DD, Wu J. Canadian Paediatric Society’s conference Beyond 2000: Healthy Tomorrows for Children and Youth, in June 2000

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2000
Progressive intellectual and neurological deterioration in paediatric population (PIND)

Keene D, Sutcliffe T, and Canadian Paediatric Surveillance Program. Canadian Paediatric Society’s conference Beyond 2000: Healthy Tomorrows for Children and Youth, in June 2000, and at the Canadian College of Neurologists’ Ottawa meeting in June 2000

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2001
Canadian Paediatric Surveillance Program: Year I results for Smith-Lemli-Opitz syndrome

Nowaczyk MJM. Paediatric Grand Rounds, Institute Monument-Centre of Child Health, Warsaw, Poland, in April 2001

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2001
Incidence of Smith-Lemli-Opitz syndrome

Nowaczyk MJM. Third International Smith-Lemli-Opitz/RSH Syndrome Scientific Symposium, Detroit, in June 2001

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2001
Molecular diagnosis of Smith-Lemli-Opitz syndrome

Nowaczyk MJM. Third International Smith-Lemli-Opitz/RSH Syndrome Scientific Symposium, Detroit, in June 2001

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2001
Canadian Paediatric Surveillance Program

Nowaczyk MJM. Association of Genetic Colleagues of Ontario Annual Educational Conference, Hamilton, in June 2001

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2001
Preliminary report of a national surveillance study of cerebral edema in paediatric diabetic ketoacidosis in Canada

Cummings E, Muirhead S, Daneman D. Lawson Wilkins Pediatric Endocrine Society/European Society of Pediatric Endocrinology Meeting, Montreal, in July 2001

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2001
Cerebral edema in diabetic ketoacidosis (CE-DKA): Preliminary results of the Canadian Paediatric Surveillance Program

Cummings E, Muirhead S, Daneman D. Annual Meeting of the International Society for Pediatric and Adolescent Diabetes, Sienna, Italy, in September 2001

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2001
Cerebral edema in diabetic ketoacidosis (CE-DKA): Preliminary results of the Canadian Paediatric Surveillance Program

Cummings E, Muirhead S, Daneman D. Canadian Diabetes Association/Canadian Society of Endocrinology and Metabolism Meeting, Edmonton, in October 2001

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2001
Postmortem molecular diagnosis of Smith-Lemli-Opitz syndrome (SLOS) in a fetus with renal agenesis

Nowaczyk MJM, Sirkin WS, Farrell SA, Eng B, Waye JS. Am J Hum Genet 2001 (in press). Annual Meeting of the American Society of Human Genetics, Dan Diego, in October 2001

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2002
X-linked adrenoleukodystrophy presenting with severe cholestasis and liver disease in a neonate

McKenzie L, Butzner JD, Robertson MA, Trevenan C, Casey R. Annual Meeting of the Canadian Association of Gastroenterology in conjunction with the Canadian Association for the Study of the Liver, Montreal, in January 2002

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2002
Cerebral edema in DKA: Canadian Paediatric Surveillance Program

Muirhead S, Cummings E, Daneman D. Canadian Pediatric Endocrine Group Annual Meeting, Niagara-on-the-Lake, in February 2002

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2002
The Canadian and British perspectives of paediatric intellectual and neurological deterioration (PIND): Are the results comparable?

Grenier D, Doherty J, Medaglia A. Annual Meeting of the Canadian Paediatric Society, Toronto, in June 2002, and the Royal College of Paediatrics and Child Health Spring Meeting, Second INoPSU Conference, York, England, in April 2002

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2002
Cerebral edema associated with diabetic ketoacidosis

Muirhead S, Cummings E, Daneman D. Royal College of Paediatrics and Child Health Spring Meeting, Second INoPSU Conference, York, England, in April 2002

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2002
Puberty & growth in CHARGE association/syndrome

Abi Daoud M, Gradstein J, Blake K. Annual Meeting of the Canadian Paediatric Society, Toronto, in June 2002

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2002
The incidence and prevalence of CHARGE association/syndrome (A/S) in Canada

Issekutz KA, Smith IM, Prasad C, Graham JM, Blake KD. Dalhousie University's Department of Pediatrics' Research Half-Day, Halifax, in June 2002

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2002
Hemorrhagic disease of the newborn ‒ An international comparison of prophylactic regimens of vitamin K

Grenier D, Doherty J, Medaglia A. Annual Meeting of the Canadian Paediatric Society, Toronto, in June 2002

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2002
Features of hepatitis C virus (HCV) infection among children and adolescents in Canada

Lapointe N, the Canadian Paediatric Surveillance Program. Annual Meeting of the Canadian Paediatric Society, Toronto, in June 2002

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2002
Anaphylaxis: the Canadian Paediatric Surveillance Program

Simons E. Annual Meeting of the Canadian Paediatric Society, Toronto, in June 2002

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2002
Cerebral edema associated with diabetic ketoacidosis: How common is it really?

Muirhead S, Cummings E, Daneman D. Annual Meeting of the Canadian Paediatric Society, Toronto, in June 2002

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2002
Canadian Paediatric Surveillance Program for Progressive Neurological Diseases

Keene D, Harmon P, Sutcliffe T, on behalf of members of the Canadian Paediatric Surveillance Program. Annual Meeting of the Child Neurology Society, Washington, in October 2002

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2002
Anaphylaxis in children: Real-time reporting from a national network

Simons FER, Chad ZH, Gold M. Allergy Frontiers and Futures, Symposium of the Collegium Internationale Allergologicum, Bermuda, in November 2002

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2002
Congenital rubella syndrome ‒ An international perspective: Are the results comparable?

Grenier D, Doherty J, Medaglia A. Canadian Immunization Conference, Victoria, in December 2002

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2003
Oral sensory experiences and feeding issues in CHARGE syndrome (A/S)

Marche DM, Dobbelsteyn C, Rashid M, Blake KD. Annual Conference of the Canadian Association of Speech-Language Pathologists and Audiologists, St. John's, in May 2003

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2003
C.H.A.R.G.E. account: The health economics of managing CHARGE syndrome

Budden H, Blake KD, IWK Health Centre, Halifax. Annual Meeting of the Canadian Paediatric Society, Calgary, in June  2003Budden H, Blake KD, IWK Health Centre, Halifax. Annual Meeting of the Canadian Paediatric Society, Calgary, in June  2003

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2003
The cranial nerve anomalies of CHARGE association/syndrome (A/S)

Lawand CMD, Blake KD, Prasad C, Graham Jr JM, Department of Pediatrics, IWK Health Centre, Halifax. Annual Meeting of the Canadian Paediatric Society, Calgary, in June 2003

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2003
Surveillance helping patients with orphan genetic disorders

Desantadina MV, Blake KD, Nowaczyk MJM. Annual Meeting of the Canadian Paediatric Society, Calgary, in June 2003

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2003
National study of paediatric hemolytic uremic syndrome in Canada

Sockett P, Proulx F. International Symposium on Shiga Toxin (Verocytotoxin) - Producing Escherichia coli Infections (VTEC 2003), Edinbugh, in June 2003

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2003
Surveillance helping patients with orphan genetic disorders

Desantadina MV, Blake KD, Nowaczyk MJM. Annual Meeting of the Canadian Paediatric Society, Calgary, in June 2003

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2003
Cerebral edema (CE) in pediatric diabetic ketoacodosis (DKA) in Canada

Cummings EA, Lawrence SE, Daneman D. Diabetes 2003;52(Suppl1):A400. Scientific Sessions of the American Diabetes Association, New Orleans, in June 2003

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2003
Puberty in CHARGE

Blake K. Workshop, International CHARGE Syndrome Conference, Cleveland, Ohio, in July 2003

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2003
General endocrine issues in CHARGE

Blake K. Workshop, International CHARGE Syndrome Conference, Cleveland, Ohio, in July 2003

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2003
Workshops on puberty in CHARGE and general endocrine issues in CHARGE

Blake K. International CHARGE Syndrome Conference, Cleveland, Ohio, in July 2003

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2003
Puberty and growth in CHARGE association/syndrome

Blake K. DbI World Conference of Deafblindness, Mississauga, in August 2003

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2003
Central nerves of CHARGE association/syndrome

Blake K. DbI World Conference of Deafblindness, Mississauga, in August 2003

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2003
CHARGE into the adolescent and adult decades

Blake K. DbI World Conference of Deafblindness, Mississauga, in August 2003

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2003
The incidence and prevalence of CHARGE association/syndrome in Canada

Issekutz KA, Smith IM, Prasad C, Graham JM, Blake KD, IWK Health Centre, Halifax, Nova Scotia. Annual Meeting of the Canadian Paediatric Society, Calgary, in June 2003, and DbI World Conference of Deafblindness, Mississauga, in August 2003

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2003
Adolescenthood and CHARGE syndrome

Blake K. Presented to Project Directors, National Technical Assistance Consortium - Office of Special Education Programs, Washington, in October 2003

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2003
Risk factors for vitamin D deficiency rickets among children living in Canada: Results of an incidence study through the Canadian Pediatric Surveillance Program

Ward LM, Gaboury I, Ladhani M, Zlotkin S. Canadian Society of Endocrinology and Metabolism’s Annual Meeting, Ottawa, in October 2003

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2004
Congenitally deafblind persons with CHARGE association

Blake K. Nordic Staff Training Centre for Deafblind Services (four-day workshop), Dronninglund Castle, Denmark, in January 2004

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2004
CHARGE into the adolescent and adult decades – videoconference presentation

Blake K. Dronninglund Castle, Denmark, in January 2004

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2004
Prospective national Canadian paediatric surveillance program for necrotizing fasciitis

Davies HD. Pediatric Academic Societies’ Annual Meeting, San Francisco, in May 2004

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2004
Outcome of group A streptococcal (GAS) necrotizing fasciitis: Evidence from a Canadian national study

Davies HD. Abstract only, published for Pediatric Academic Societies’ Annual Meeting, San Francisco, in May 2004

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2004
Neonatal herpes simplex virus infections in Canada

Kropp RY, Wong T, Burton S, Embree J, Steben M. BASHH/ASTDA Spring Meeting, Bath, UK, in May 2004

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2004
Subacute sclerosing panencephalitis: A report on the Canadian Paediatric Surveillance Program

Levin S, Campbell C, Humphreys P, Brannan R, Walop W. Canadian Congress of Neurological Sciences Meeting, Calgary, in June 2004

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2004
Severe neonatal hyperbilirubinemia: Cause for concern?

Campbell DM, Sgro M, Shah V. Annual Meeting of the Canadian Paediatric Society, Montreal, in June 2004

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2004
The many faces of osteogenesis imperfecta

Glorieux F. Annual Meeting of the Canadian Paediatric Society, Montreal, in June 2004

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2004
Vitamin D deficiency in rickets (VDDR) among children living in Canada: A new look at an old disease

Ward LM. Annual Meeting of the Canadian Paediatric Society, Montreal, in June 2004

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2004
Neonatal herpes simplex virus infections in Canada

Wong T, Burton S, Cormier L, Embree J, Steben M, Rusen ID. International Society for Sexually Transmitted Disease Research Conference, Ottawa, in July 2003

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2004
Severe neonatal hyperbilirubinemia in Canadian newborns: A preventable disease?

Campbell D. Annual Meeting of the Canadian Association of Paediatric Health Centres, Montreal, in November 2004